Here is a picture in the ultrasound room after it was done. Rick looks really tired because he was tired. After that amount of blood is drawn he gets really tired. He came back to the hotel and took a 3 hour nap.
This morning was the appointment with Dr. L. We are very pleased with how it turned out. Dr. L said that the PSC seems stable at this point. He said that the bout of itching and jaundice that led to the ERCP this past February was just how PSC works and it seems to not be an issue now. He gave us LOTS of information and we also gave him LOTS of information. More on that in a minute. Rick appears to be doing good at this point. It is about time we finally got some good news. Dr. L talked about how important it is to get the yearly ultrasound and specialized blood workup. He said it would be good to keep coming back yearly but he understands that we live a long way from Mayo and it may not be financially feasible to come back every year. So we will see how things are going next year and then make a decision whether we can afford to go or not.
As worried as I was about how this would end up, it ended up all being worth it. It was worth the money and the time to hear from this doctor that everything seems to be good at this point. We had a great talk with him and laughed. Did I mention we gave him some information?? When he was checking out Rick he was looking at Rick's back and asked "where did they do the surgery??" When Rick showed him the scar in his abdomen the doctor was shocked!! He couldn't believe that spinal fusion could happen through the abdomen. Here was a world renowned liver specialist asking US questions about surgery. It was fun and he was really interested in how it all worked.
So in summary, Rick is doing good. YEAH!!! Finally something went our way!! Now we are in Rochester for a few more days with no appointments. We talked about going home early but decided to stay and do the tourist thing. We deserve a little break.
I would be very happy to answer any questions you may have about Rick's health or our experiences. Please don't be shy. If there is something you have be wondering or something you want to know please don't hesitate to ask. Just leave your questions in the comments with this post.
Thank you all for your support and prayers.
Until next time,
Jaime
4 comments:
Hi, Jaime & Rick,
Hooray! I'm so glad you got such a good report - what a relief! It's about time things started turning your way. And I'm glad you found another PSC couple to share experiences with. Now relax and enjoy the rest of your trip!
Love,
Connie
I've been following your blog and I just wanted to say that I have been praying that all would go well. Congrats on the good news!
I am so happy for the good news. Now hopefully you can enjoy your last couple days of vacation.
And taking your picture in the reflection... very clever.
-- Stephanie
from Dallas
Hi,
I followed you while back. Has Rick had his transplant yet? I had a liver transplant 15 months ago. I HAD PSC, and I'm happy to say I am doing well. I still have pain everyday, from fluid around my liver, that hopefully will dry up and go away!
Just wanted to touch base and say hi.
Lynn Livingston
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